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July 30, 2013
Our SuperHero is going strong! Chemo treatment # 2 is a thing of the past and, at present, JR is sleeping peacefully in his crib in his home. All is right in our world -well, almost.
Today was easy-peasy compared to last week. I like out-patient days! We were in at 9am and home by 3pm. What a difference to not spend the night, and, subsequently, then entire next day in the hospital. Today I learned what to expect on out-patient chemo days, which thankfully will be the majority of our visits. We arrived promptly at 9am, waited for a while, had vitals taken, waited a while, had cream applied to port, waited a while, port accessed and blood drawn, wait (2 hours), doctors visited to review blood counts with me, discuss matters, and approve chemo, wait (while chemo is made in pharmacy), chemo injected, port de-accessed, check-out and done! Rather impressive that it took under 6 hours, really. We were told to expect chemo treatment days to last all day, so I told B I hoped to see him for dinner. When we were done by 2:30 I received the gift of a few unexpected hours of time-which JR and I spent NAPPING. Glorious!
As you can see from today's picture, JR's eye is looking fantastic! His blood counts all fell within the "normal" range, though they are expected to drop over the next few days. We will be at Duke for blood-work every Friday. John Ryan's demeanor is as cheerful as ever, and everyone who meets him just falls for that grin he flashes. It's really hard to believe he is sick some of the time -though the reminders are constant. Brandon and I are feeling remarkably better as of late. A week ago we didn't believe life would ever feel "normal" again, but we're getting there. We are both starting to feel like ourselves again, and we are able to function as productive adults -this is a dramatic improvement!
I believe we are navigating through and coping well at this point. John Ryan sets an example for all! We continue to feel overwhelming gratitude for the love and support we are receiving daily. Thank you for the big and small ways you are impacting our lives and hearts. <3
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